Every year, the New York Islanders honor a child with Barth syndrome as part of their Hockey with a Heart initiative, supporting the Barth Syndrome Foundation. This year, Deacon will drop the ceremonial puck at the beginning of the game. 

The Barth Syndrome Foundation (BSF) is dedicated to a noble mission: saving lives through education, pioneering treatments, and ultimately, discovering a cure for Barth syndrome. Your generous donation not only fuels groundbreaking research but also vital programs that provide essential support to families navigating the challenges of living with or caring for someone with Barth syndrome.

Join us in making a tangible difference in the lives of children like Deacon. Your contribution to the Barth Syndrome Foundation will help transform the landscape of care and bring hope to countless families.

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        Barth Syndrome Foundation
        https://www.barthsyndrome.org/
        bsfinfo@barthsyndrome.org
        (914) 303-6323
        2005 Palmer Avenue #1033
        Larchmont, New York 10538
        US

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        New York Islanders 2024

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