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The generosity of donors like you funded the advocacy that led to the approval of the first regulatory approval of a treatment for Barth syndrome.

Now, it is thanks to you that we can continue our work.

We aim for a world where all families affected by Barth syndrome have access to community and a robust portfolio of effective, affordable therapies. Every donation, whether $5 or $5000, directly supports this work.

We are profoundly grateful for your commitment to our cause.

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Address to send donations by mail:

Barth Syndrome Foundation, PO Box 419264

Boston, MA 02241-9264

Barth Syndrome Foundation
https://www.barthsyndrome.org/
Emily.Milligan@BarthSyndrome.org
(914) 303-6323
2005 Palmer Avenue #1033
Larchmont, New York 10538
US

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