OUR FAMILIES ARE COUNTING ON YOU!

OUR MISSION

Saving lives through education, advances in treatment, and finding a cure for Barth syndrome.

OUR VISION

A world in which Barth syndrome no longer causes suffering or loss of life.

WE NEED YOUR HELP

Since 2000, BSF has been a lifeline for those who suffer from Barth syndrome, offering 24/7 support, pioneering standards of care and diagnosis, creating collaborations between clinicians, researchers and patients, and most importantly, making sure no person with Barth syndrome is ever alone.

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      Address to send donations by mail:  

      Barth Syndrome Foundation, PO Box 419264 

      Boston, MA 02241-9264

      Barth Syndrome Foundation
      https://www.barthsyndrome.org/
      bsfinfo@barthsyndrome.org
      (914) 303-6323
      2005 Palmer Avenue #1033
      Larchmont, New York 10538
      US